
Parenting Children with Autism Spectrum Disorder (ASD) in Eswatini: An Assessment of the Challenges and Possible Intervention Strategies
Issue: Vol.6 No.9 Article 16 pp.1974 – 1989
DOI: https://doi.org/10.38159/ehass.20256916 | Published online 27th August, 2025
© 2025 The Author(s). This is an open access article under the CCBY license (http://creativecommons.org/licenses/by/4.0/).
This study examined the experiences of parents raising children with autism spectrum disorder (ASD) in Eswatini. ASD is a complex neurological condition that affects brain function, leading to difficulties in various developmental areas such as social interaction, communication, and behaviour. It usually becomes apparent within the first three years of a child’s life. This qualitative study, grounded in bioecological systems theory, aimed at uncovering the challenges faced by 20 parents of children with ASD in Eswatini, as well as the strategies they employ to manage their children’s unique behaviours and the effective parenting approaches they use to care for them. Through in-depth, semi-structured interviews, this study sheds light on the experiences of these parents, using interpretative phenomenological analysis to identify emerging themes and patterns. The findings obtained revealed various challenges, including lack of financial support, lack of awareness, delayed diagnosis and difficult access to support services, among others. The study recommended strategies that can support parents living with autistic children, including various forms of therapy, teaching self-regulation, giving love, joining support groups, learning more about the condition and acquiring skills to manage the condition. The findings could offer valuable information to policymakers and support services, helping to develop future welfare plans, educational resources, and social support systems for vulnerable families in Eswatini and potentially other developing countries.
Keywords: Autism Spectrum Disorder, Parenting, Intervention Strategies, Eswatini
Abubakar, A., S. Khan, and R. M. Santos. “Autism Research in Sub-Saharan Africa: A Review of the Literature.” African Journal of Psychiatry 19, no. 5 (2016): 1–8.
Akbulut, Y. “The Impact of Autism on Families: A Qualitative Study.” Journal of Autism and Developmental Disorders 49, no. 6 (2019): 2485–95.
Akkuş, Y., M. Küçük, and B. Yıldız. “Family Adjustment and Stress of Parents Raising a Child with Autism in Eswatini.” International Journal of Family Therapy 42, no. 3 (2020): 456-469.
American Psychiatric Association. “Highlights of Changes from DSM IV TR to DSM 5.” American Psychiatric Association, 2013. http://www.dsm5.org/Pages/Default.aspx.
Braun, Virginia, and Victoria Clarke. “Thematic Analysis: A Practical Guide,” 2021.
Brobst, J. B., J. R. Clopton, and C. Hendricks. “ Parents of Children with Autism: The Importance of Social Support.” Journal of Autism and Developmental Disorders 39, no. 9 (2009): 1152-1163.
Bronfenbrenner, Urie. The Ecology of Human Development: Experiments by Nature and Design. Cambridge, MA: Harvard University Press, 1979.
Bronfenbrenner, Urie, and Pamela A Morris. “The Bioecological Model of Human Development.” Handbook of Child Psychology 1 (2007).
Clarke, Victoria, and Virginia Braun. “Teaching Thematic Analysis: Overcoming Challenges and Developing Strategies for Effective Learning.” The Psychologist 26, no. 2 (2013).
Curley, Kenneth, Rory Colman, Annabel Rushforth, and Yasuhiro Kotera. “Stress Reduction Interventions for Parents of Children with Autism Spectrum Disorder: A Focused Literature Review.” Youth 3, no. 1 (2023): 246–60.
Dissanayake, C., A., Richdale, N., Kolivas, and L. Pamment. “ An Exploratory Study of Autism Traits and Parenting.” Journal of Autism and Developmental Disorders 50, no. 7 (2020): 2593–2606.
Divan, G., V. Vajaratkar, M. U. Desai, L. Strik-Lievers, and V. Patel. “Challenges, Coping Strategies, and Unmet Needs of Families with a Child with Autism Spectrum Disorder in Goa, India.” Autism Research 5, no. 3 (2015): 190–200.
Dlamini, M. “Addressing the Challenges Faced by Families of Children with Autism in Eswatini. .” Swazi Journal of Health, 9, no. 2 (2012): 55-65.
Ebrahimi Meimand, Sepideh, Zahra Amiri, Parnian Shobeiri, Mohammad‐Reza Malekpour, Sahar Saeedi Moghaddam, Ali Ghanbari, Yeganeh Sharifnejad Tehrani, Zahra Shokri Varniab, Ashkan Pourabhari Langroudi, and Hanye Sohrabi. “Burden of Autism Spectrum Disorders in North Africa and Middle East from 1990 to 2019: A Systematic Analysis for the Global Burden of Disease Study 2019.” Brain and Behavior 13, no. 7 (2023): e3067.
Falk, N., K. Norris, and M. G. Quinn. “ Parenting Children with Autism Spectrum Disorder: The Impact of Stress and Other Factors.” Journal of Autism and Developmental Disorders 44, no. 8 (2014): 1983–96.
Gray, D. E. “Ten Years on: A Longitudinal Study of Families of Children with Autism.” Journal of Intellectual & Developmental Disability 27, no. 3 (2002): 215–22.
Holden, Rachel, Joanne Mueller, John McGowan, Jyoti Sanyal, Maxim Kikoler, Emily Simonoff, Sumithra Velupillai, and Johnny Downs. “Investigating Bullying as a Predictor of Suicidality in a Clinical Sample of Adolescents with Autism Spectrum Disorder.” Autism Research 13, no. 6 (June 21, 2020): 988–97. https://doi.org/10.1002/aur.2292.
Hsiao, Yun-Ju, Kyle Higgins, Tom Pierce, Peggy J. Schaefer Whitby, and Richard D. Tandy. “Parental Stress, Family Quality of Life, and Family-Teacher Partnerships: Families of Children with Autism Spectrum Disorder.” Research in Developmental Disabilities 70 (November 2017): 152–62. https://doi.org/10.1016/j.ridd.2017.08.013.
Keen, D., J. Sigafoos, and T. Attwood. “Parents’ Perceptions of Interventions for Children with Autism Spectrum Disorder: A Qualitative Analysis. .” Journal of Autism and Developmental Disorders 40, no. 12 (2010): 1537-1546.
Khumalo, A., and Z. Dlamini. “Cultural Attitudes and Social Stigma Surrounding Autism in Eswatini: Implications for Community-Based Support.” African Journal of Psychiatry 22, no. 4 (2022): 345-356.
Kudaibergenova, N. “The Effects of Autism on Families in Eswatini: Understanding Social and Economic Challenges. .” Social Development Review 45, no. 2 (2018): 82–98.
Lavelle, T. A., D. L. Kuo, and L. L. McIntyre. “Cost of Autism Spectrum Disorders in the United States: An Analysis of Economic Impact. .” JAMA Pediatrics, 168, no. 4 (2014): 392–98.
Lutz, S., M. Wilson, and M. Diamond. “Parenting Children with Autism: A Qualitative Perspective on Emotional Wellbeing. .” International Journal of Child Psychology 67, no. 3 (2012): 543-557.
Mabaso, M. “Exploring Bronfenbrenner’s Bioecological Model: Understanding Human Development in Complex Environments. .” Journal of Developmental Psychology 49, no. 6 (2020): 49-60.
Makwakwa, D., and T. Makufa. “The Role of Parent Support in Raising Children with Autism in Eswatini. .” Journal of Special Needs Education 35, no. 5 (2020): 1124–35.
Marinović, Vesna, and Birgit Träuble. “Vicarious Social Exclusion and Memory in Young Children.” Developmental Psychology 54, no. 11 (November 2018): 2067–76. https://doi.org/10.1037/dev0000593.
Mpofu, Phumuzani, and Nhlanhla Mkhatshwa. “The Practicality of Inclusive Education in Eswatini Primary Schools.” International Journal of Educational Management & Development Studies 5, no. 4 (December 31, 2024): 158–77. https://doi.org/10.53378/ijemds.353123.
Mvubu, E. “The Experience of Autism in Eswatini: Understanding the Impact on Families.” South African Journal of Disability Studies 22, no. 4 (2018): 50–58.
National Autistic Society. “ Education Report 2023: Understanding Autism in School –Peer Relationships, Bullying, and Transitions.” National Autistic Society, 2023. https://www.autism.org.uk/what-we-do/news/education-report-2023.
Nkonyane, Fanele, Thavanesi Gurayah, and Thanalutchmy Lingah. “Challenges and Coping Strategies of Parents of Children with Autism Spectrum Disorder in Eswatini.” Journal of Child & Adolescent Mental Health 33, no. 1–3 (September 2, 2021): 32–41. https://doi.org/10.2989/17280583.2023.2259428.
Nuri, M., B. Nuri, and Z. Nuri. “Financial Burden and Coping Strategies of Families with Children Diagnosed with Autism in Africa.” Autism Research and Practice 33, no. 7 (2018): 235-248.
Salari, Nader, Shabnam Rasoulpoor, Shna Rasoulpoor, Shamarina Shohaimi, Sima Jafarpour, Nasrin Abdoli, Behnam Khaledi-Paveh, and Masoud Mohammadi. “The Global Prevalence of Autism Spectrum Disorder: A Comprehensive Systematic Review and Meta-Analysis.” Italian Journal of Pediatrics 48, no. 1 (2022): 112.
Salgado, S. A. “Autism Services in Eswatini: Challenges and Opportunities for Healthcare Professionals.” Journal of Health Research 44, no. 1 (2020): 29–40.
Schnabel, R., G. Guberman, and D. Holstein. “Mental Health Challenges in the Families of Children with Autism: An Examination of Stress and Intervention Strategies. .” Journal of Family Psychology 32, no. 4 (2020): 330-344.
Shattnawi, K.K., K. K. Dodd, and W. L. McCarty. “Parent-Child Interaction and the Development of Autism Spectrum Disorder: A Cultural Approach.” Research in Autism Spectrum Disorders 29 (2020).
Speaks, Autism. “Autism Speaks.” June 11. Https://Www. Autismspeaks. Org/about-Us, 2012.
Swaziland Ministry of Education and Training. “Annual Report on Education Statistics and Inclusion in Schools for Children with Disabilities. ,” 2018.
Wang, J., X. Zhou, W. Xia, C.-H. Sun, L.-J. Wu, J.-L. Wang, and A. Tomoda. “ Parent-Reported Health Care Expenditures Associated with Autism Spectrum Disorders in Heilongjiang Province, China.” BMC Health Services Research 12, no. 1 (2012): 7.
Weinberg, M. S., S. Peterson, and L. Carter. “Parenting Stress in Families of Children with Autism Spectrum Disorder: A Meta-Analysis of Global Studies.” Research in Autism Spectrum Disorders 63 (2021): 101–437.
Weitlauf, Amy S., Melisa L. McPheeters, and A. Hagedorn. “The Impact of Challenging Behaviors in Children with Autism Spectrum Disorder on Parental Stress: A Longitudinal Analysis.” Pediatrics 145, no. 2 (2020): 1-9.
World Health Organization. “Autism Spectrum Disorders: A Global Perspective. WHO,” 2013.
World Health Organization. “Global Impact of COVID-19 on Human Rights and Development.” WHO Technical Report Series, 2023.
Yang, Y. “Bronfenbrenner’s Ecological Systems Theory: An Overview. .” Online Psychology Degrees, 2021.
Yassıbaş, Emine. “The Impact of Autism on the Family: A Literature Review.” Journal of Intellectual Disability Research 59, no. 3 (2015): 232–43.
Yu, Yue, Sally Ozonoff, and Meghan Miller. “Assessment of Autism Spectrum Disorder.” Assessment, 2024.
Zeidan, Jinan, Eric Fombonne, Julie Scorah, Alaa Ibrahim, Maureen S Durkin, Shekhar Saxena, Afiqah Yusuf, Andy Shih, and Mayada Elsabbagh. “Global Prevalence of Autism: A Systematic Review Update.” Autism Research 15, no. 5 (2022): 778–90.
Dr. Phumuzani Mpofu is an Educational Psychologist registered with the Eswatini Medical and Dental Council. He holds a PhD in Educational Psychology from North West University and is currently a Postdoctoral Fellow at the University of the Witwatersrand. His research spans child development, parenting, gerontology, inclusive education, gender issues, sexual offenses, assessments, sustainable development, and corporal punishment. He has published 25 peer-reviewed journal articles, a book chapter on teacher placement during teaching practice, and developed a module on School Inspection for the Institute of Development Management (IDM). Dr. Mpofu began his career in teaching, progressing to leadership roles as Head of Department in schools and colleges across Zimbabwe and Eswatini. In higher education, he served as a research coordinator at AMADI/MSU, supervising numerous research projects from diploma to master’s level. He has peer-reviewed over 10 academic articles and actively mentors PhD candidates and emerging researchers, especially in Eswatini. His goal is to contribute extensively to academia and attain a professorship.
Lungile Mamba holds a Bachelor of Arts degree in Psychology from the Eswatini College of Theology. She is at the beginning of her academic and professional journey in the field of psychology, which she has recently entered as a developing career. Despite being early in her career, she has already published one peer-reviewed journal article, with two additional manuscripts currently under review.
Dr. Simangele Mayisela is a Senior Lecturer and the Educational Psychologist in the Department of Psychology at the University of the Witwatersrand. She was a three consecutive years Next Generation Social Sciences in Africa fellowship holder for her Doctoral degree, which she obtained from the University of Cape Town. She is currently lecturing on Psychoanalytic psychotherapy and Play Therapy at the Masters level and Cognitive Psychology at the undergraduate level. Her research interests are embedded in the appropriation of the Psychoanalytic and the Cultural Historical Activity Theory as epistemological lenses to understand nuances of parent-child, teacher-child relations, and intergenerational violence, and trauma, with specific reference to corporal punishment.
Mpofu, Phumuzani, Lungile Goodness Mamba, and Simangele Mayisela. “Parenting Children with Autism Spectrum Disorder (ASD) in Eswatini: An Assessment of the Challenges and Possible Intervention Strategies,” E-Journal of Humanities, Arts and Social Sciences 6, no. 9 (2025): 1974- 1989, https://doi.org/10.38159/ehass.20256916.
© 2025 The Author(s). Published and Maintained by Noyam Journals. This is an open access article under the CCBY license (http://creativecommons.org/licenses/by/4.0/).









